Multiple Myeloma Support Group – Toronto.
Summary of Presentation – April 1, 2017 Meeting
Dr. Suzanne Trudel, MD FRCPC
Staff Hematologist, Myeloma Program, Princess Margaret Cancer Centre, Associate Professor, University of Toronto
The full 1 hour 39 minute video recording of the presentation is linked here: https://www.youtube.com/watch?v=WNfuU3Re8K8
Navigating the services for myeloma patients is very challenging and better done with the help of a social worker.
To access the services of a social worker,
the Patient & Family Support (Psychosocial Oncology) Program is available by calling
613-737-8899 ext. 70516 General Campus
or
(613) 737-7700 ext. 25200 Queensway Carleton Hospital Campus
You can come to us for a variety of supports, such as:
We are up and walking to raise funds for Myeloma Canada and for the Ottawa Hospital.
Last year, Ottawa-Gatineau raised nearly $75,000.
Nation wide, nearly $500,000 was raised for myeloma research, drug advocacy and awareness.
To further information and to register for fundraising,
go to one of the links below:
Myeloma Funderaiser Champion, Anne Murphy.
See her page at https://endurance.themmrf.org/IMLP703/ironannie
Below, a message from her:
Dear Friends,
I will be participating in the 2017 IRONMAN 70.3 Lake Placid on September 10, 2017 as part of the Multiple Myeloma Research Foundation (MMRF) Team For Cures.
I am participating in honour of my good friend Irene Podgorski (in photo above with her husband and 4 beautiful grandchildren). Irene has been living with Multiple Myeloma for an outstanding 8 years!
Multiple myeloma is the second most common form of blood cancer and, sadly, has one of the lowest five-year relative survival rates of all cancers. But while there is no cure, great progress is being made.
In fact, thanks to the important work of the MMRF, the world’s leading private funder of myeloma research, the FDA has approved TEN new treatments, including FOUR in just the past 18 months – a track record that’s unparalleled in the world of oncology. These drugs have almost tripled the lifespan of myeloma patients.
The MMRF is one of the most highly regarded cancer foundations in the world. An outstanding 90% of the total MMRF budget goes directly towards research and related programming.
CANADIAN DONORS: Please be aware that your donation will be processed in US currency. Unfortunately, you won’t get a tax receipt…however, your donations will help fund research that spans across borders. For example, the latest treatments available to Canadians were developed by doctors at the Mayo Clinic, one of whom now works at the Ottawa Hospital.
Please support my participation in the 2017 IRONMAN 70.3 Lake Placid benefiting the MMRF. I have made a commitment to raise at least $2,500 US, and I need your help to get there.Please contribute whatever you can. It all adds up!
Sincere thanks!
Anne
Link to this CTV story below:
The Ottawa-Gatineau Multiple Myeloma Support Group invites Myeloma patients, family, caregivers and friends to our monthly information and sharing meetings.
PLACE: Maplesoft Centre, 1500 Alta Vista Drive.
TIME: 6:45-8:45 PM
The meetings begin with a guest speaker and discussion followed by a session where patients and caregivers share their experience with the disease. The mission of the Support Group is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.
Tuesday, March 7th (note: begins earlier at 6:30PM)
Louise Haley, an oncology physiotherapist will talk about rehabilitation and exercise regimes for Myeloma patients.
Tuesday, April 4th
Dr. A. McCurdy will discuss treatment developments for Myeloma patients.
Tuesday, May 2nd
Aldo Del Col, Co-founder and Chair Myeloma Canada, will introduce Myeloma Canada’s Research Network and its important work on behalf of Myeloma patients.
Tuesday, June 6th
Aimee Anderson, MSW RSW, Social Worker, will talk about community support services available for Myeloma patients and their families.
Come join us!
Driving Directions:
Maplesoft Centre 1500 Alta Vista Drive Ottawa, Ontario
Coming from the Queensway East:
Exit 117 onto Vanier Parkway towards Riverside Drive. Keep left towards Riverside Drive. Turn left onto Vanier Parkway towards Riverside Drive. After the Queensway overpass, get into lane marked “Alta Vista Drive only”. Turn left onto Industrial Ave. Immediately turn right onto Alta Vista Drive. The destination is on the right.
Coming from Queensway West:
Exit 117 onto Riverside Drive. Get into lane marked “Alta Vista Drive only”. Turn left onto Industrial Ave. Immediately turn right onto Alta Vista Drive. The destination is on the right.
Contact Us
For more information on the Ottawa –Gatineau Support Group please contact: Robin Sully, telephone: 613 622 5461 or email: maplecrest2553@xplornet.ca or
Jean Shepherd, 613-277-4886 or email: jean.shepherd@rogers.com
Wonderful summary of information about myeloma at the following link:
Click to access ph_en_2014_lr.pdf
On September 1, the Myeloma Canada Research Network (MCRN) officially launched the MCRN Canadian Multiple Myeloma Database. It will capture relevant data and work toward optimizing the care of Canadian myeloma patients, across the country. Most of the larger cancer treatment centres in Canada will participate in the Database.
The official launch had the following speakers: Dr. Reece from Princess Margaret, Dr. Venner from Edmonton who is Chair of the Database, and Aldo Del Col from Myeloma Canada.
Princess Margaret has a very key role. There was significant media coverage, and a press release, linked here: http://www.newswire.ca/news-releases/first-multiple-myeloma-database-for-canada-captures-real-world-patient-evidence-591994171.html.
Myeloma Ottawa Gatineau 