Ottawa-Gatineau Myeloma Walk

Screen Shot 2019-06-30 at 9.59.05 AM.png

Advertisements

Steps to a Cure 2019!

This year’s Ottawa-Gatineau Multiple Myeloma Walk is scheduled for Sunday, September 22, 2019 at the Ron Kolbus Centre, Britannia Park, Ottawa.  Registration opens at noon, with the walk starting at 1 pm.  

Come early to place a bid on the silent auction items, and to pick up your 50/50 tickets.  Opening ceremonies start at 12:40pm with guest speakers including Dr. Arleigh McCurdy from the Myeloma Team of the Ottawa Hospital,  Dr. Karim Abou-Nassar from the Oncology Team of the Gatineau Hospital, and Mayor Jim Watson from the City of Ottawa.

You are encouraged to pre-register at www.stepstoacure.ca  .  Family, friends, neighbours and colleagues are all invited to participate.  You can register as a team or as individuals.  This year’s fundraising goal is $80,000.  50% of funds raised will be used for research by Myeloma Canada, and 50% will be used for research into Car-T therapy by the Ottawa Hospital.

Detailed instructions on the registration process, and a copy of the event poster, are attached for your convenience. 

 For additional information about the walk, or should you wish to join our volunteer team, please contact Frank Shepherd at frank.shepherd@rogers.com or Glenn Hussey at helene-glenn@rogers.com.

 Together, let’s make the 2019 edition of Steps to a Cure a successful and memorable event.

Frank Shepherd and Glenn Hussey
2019 Steps to a Cure Walk Co-chairs

June 5th Meeting Reminder

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK 

 supporting patients with myeloma

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our monthly information and sharing meetings. 

PLACE:         Maplesoft Centre, 1500 Alta Vista Drive.

TIME:            6:45-8:45 PM

This is our last meeting before the summer break until September.  

We will begin with a short update on plans for this year’s Steps to a Cure Walk from Frank Glenn.

Our guest speaker,Dr. Peter Konzuk, ophthalmologistwill talk about The effects of Myeloma on the eyes.   

After his presentation there is a break for refreshments and discussion followed by a session where patients and caregivers share their experience with the disease. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

Please note: Dr. Konzuk sent along a web site about the Orbis Eye Surgery hospital plane that travels the world performing eye surgeries (https://can.orbis.org/en/the-orbis-flying-eye-hospital-is-coming-to-ottawa )He was field medical director of the Orbis Project – 1989-90. I think his talk and presentation will be very interesting.  The Orbis Flying Eye Hospital which will, coincidentally, be here in Ottawa June 1-3 and you can register on the web site if you wish to go and see it.

Steps to a Cure: 2019

 

P2220469.JPG

This year’s Walk will take place on Sunday September 22nd at the Ron Kolbus Lakeside Center.

The Ottawa-Gatineau Multiple Myeloma Steps to a Cure Walk is organized by members of the Ottawa- Gatineau Myeloma Community Network and other volunteers. The vision of the Network is to improve the quality of life for those affected by multiple myeloma and its mission is to provide support for those affected by multiple myeloma in the Ottawa-Gatineau Region through awareness, education, advocacy and supporting research.

The goals for our Walk are to bring the myeloma community together: patients, caregivers, family, friends, researchers and clinicians; to increase awareness of the disease; and ,to raise funds to support research activities, both locally and nationally to improve patient care and outcomes.

Myeloma Canada is our national partner in the Walk, and receives half of the funds raised to help support their range of research activities (including the Myeloma Canada Research Network). In recent years, the Ottawa Hospital Foundation has received the other half which has benefitted Dr. McCurdy’s myeloma research activities.

This year locally we hope to support the expansion of the Ottawa General Hospital’s Car-T program to treat patients with multiple myeloma. Car-T therapy is an exciting new immune treatment for patients with blood cancers, that has the potential to treat even solid tumor cancers eventually. The treatment is currently being used for patients with lymphoma and leukemia. Dr. McCurdy’s group working with Dr. Natasha Kekre expect to be able to treat patients with myeloma in CAR-T clinical trials as early as the summer.

We are looking for volunteers to help organize this year’s event!

Please contact Frank Shepherd, Robin Sully, Gilles Caron or Glen Hussey if you are interested in helping.

For more information on the Ottawa –Gatineau Community Network please contact:

Robin Sully at 613 622 5461; maplecrest2553@explornet.ca or

Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com