Come join us virtually!

Wednesday, May 5 th, 7:00 pm 

The meeting will follow-up with Dr. McCurdy’s last session and share participants experiences to date accessing the Covid vaccine.

We will also take time to share treatment experiences and/or challenges that participants may be currently dealing with in their myeloma journey.

Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma patients to physically distance
we plan to continue to hold our spring all sessions on Zoom. 

Based on our fall Zoom experience and feedback from participants
we have revamped the structure of the meetings so that two of the meetings will focus on “ Share and Care” and two will be discussions with medical clinicians on new developments in myeloma treatments and clinical procedures.  

The meetings will start at 7:00PM and last an hour and a half.  

Zoom details on how to register and join the meetings are given below. We look forward to “seeing” you!

If you have not received the meeting invite and would like to join, please contact Jean Shepherd – jean.shepherd@rogers.com

COVID Vaccine Update

Hi everyone,

Just another short update.   

For those who are still waiting to be contacted by the TOH Vaccination team, you may be able to use the following link to enter your information for pre-registration:

https://forms.office.com/r/M1GdbHWspC 

We are aware of a number of patients who have been successful doing this and have then received a phone call within a couple of days to book their vaccination appointment (even when they have had their first shot elsewhere). 

It may be worthwhile trying this is it helps you get an earlier appointment.

We hope you are all staying safe,

Robin and Jean

COVID 19 OPH Vaccination update

  1. MM Patients on treatment/post transplant meet the criteria for vaccine, and also for the dose-delay exemption.
  2. Please be patient, there are thousands of patients with many illnesses, and unfortunately limited doses of vaccines at TOH (and in the province in general). 
  3. If possible, we do recommend accessing vaccine in community (as discussed in our zoom meeting last week)
  4. Lists of all of our patients meeting criteria have been submitted to the TOH vaccine center, and patients will be contacted in time.
  5. Public Health/community vaccine centers are aware of hematology patients meeting the second dose exemption, and as of today should no longer be requiring letters from MDs- they will honour patients self-identifying for the earlier second dose.
  6. TOH has also asked OPH for a list of hematology patients who had first dose in community, so that we can book second doses if supply allows.

We are aware that some patients who have been contacted by TOH and have already had their first dose in the community have been able to book their second dose with TOH.

This of course may depend on vaccine availability moving forward.

Dr. McCurdy and her team are doing everything they can to move this vaccination process forward for us and will continue to pass on details as they become available…as we will.

In the mean time, we hope you will all take care to follow all recommended provincial and local Health Care guidelines, and stay safe.

April 7 th Virtual Meeting, 7pm – 8:30pm COVID VACCINATIONS INFO

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK –
supporting patients with myeloma

 
Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma
patients to physically distance we plan to continue to hold our spring all sessions on Zoom.
Our next meeting is on:


Wednesday, April 7 th  we will be joined by  Dr. Arleigh McCurdy who will talk about
COVID vaccination for Myeloma patients, any other issues or new developments,
and try to answer your questions.


Come join us virtually!
For more information on the Ottawa – Gatineau Community Network please
contact: Robin Sully at 613 622 5461; maplecrest2553@xplornet.ca or Jean Shepherd
at 613 277 4886; jean.shepherd@rogers.com


If you would like to join this meeting are not on our mailing list (and did not already
receive notification, please contact Frank Shepherd at frank.shepherd@rogers.com

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family,
and caregivers to our 2021 spring monthly information and sharing meetings. The mission of the
Community Network is to provide hope and to empower Myeloma patients, family, caregivers
through education, advocacy, patient care and support and sharing experiences.

Steps to a Cure 2021

Steps To A Cure – The Ottawa-Gatineau Myeloma Walk
In spite of the uncertainty and challenges associated with the COVID pandemic, last
year’s Steps to a Cure Virtual Walk was a great success.

At the outset, we were unsure whether we would get good publicity and participation, and whether we would be competing with other deserving charities for funds to support our research goals.


Thanks to everyone’s efforts we surpassed expectations on all fronts. Myeloma
Canada have a team (Pickering Communications) who promote all the Walk events
(including ours) and this year as a result of their efforts, Glenn was interviewed both
on local newspaper and CTV News – watch the video link at
https://ottawa.ctvnews.ca/covid-19-pandemic-doesn-t-stop-multiple-myeloma-
march-from-raising-over-60-000-1.5112675 .


And thanks to everyone’s participation we raised over $70,000.

Normally although half of the funds we raise support the work of Myeloma Canada, this year Martine Elias from Myeloma Canada agreed to support an additional research project. Over $65,000 came back to help support Myeloma research in Ottawa. See
https://med.uottawa.ca/en/news/faculty-medicines-2020-translational-research-
grants-set-stage-exciting-bench-bedside

2021 Spring Zoom Meeting Agenda: Come join us virtually!

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK – supporting patients with myeloma

2021 Spring Zoom Meeting Agenda

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our 2021 spring monthly information and sharing meetings. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma patients to physically distance we plan to continue to hold our spring all sessions on Zoom. Based on our fall Zoom experience and feedback from participants we have revamped the structure of the meetings so that two of the meetings will focus on “ Share and Care” and two will be discussions with medical clinicians on new developments in myeloma treatments and clinical procedures.  The meetings will start at 7:00PM and last an hour and a half.  Zoom details on how to register and join the meetings are given below. We look forward to “seeing” you!

Wednesday, March 3rd will be a Share and Care meeting. A chance to share experiences with myeloma patients and caregivers and to catch up on recent local and national myeloma advocacy,  education, research and fundraising initiatives.

Wednesday, April 7th we will be joined by  Dr. Arleigh McCurdy or one of her colleagues who will talk about new developments in myeloma treatments.

Wednesday, May 5th  will be a Share and Care meeting. Another chance to share experiences with myeloma patients and caregivers and to catch up on recent local and national myeloma advocacy,  education, research and fundraising initiatives.

Wednesday, June 2nd a medical clinician will join us to talk about clinical procedures and materials that may assist and support our navigation through the treatment process.

Come join us virtually!

For more information on the Ottawa –Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@xplornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Join us!

Our next meeting is scheduled for November 4th  beginning at 7:00PM. The speaker will be Dr. Arleigh McCurdy, who will review the new patient MyChart reports and talk about familial connections in myeloma and the potential pros and cons of MGUS testing.

The meetings are run on Zoom and the instructions on how to join the meeting are shown below:

Hi there,

You are invited to a Zoom meeting.

When: Nov 4, 2020 07:00 PM Eastern Time (US and Canada)

Register in advance for this meeting:

https://us02web.zoom.us/meeting/register/tZYqcu2vpjssEtYp9I6R9SY2jvwQG3dzpvMC

After registering, you will receive a confirmation email containing information about joining the meeting. If you already registered for the September meeting you should be able to use the same link you received for this meeting. Please note, when you connect to the meeting this time, you will first be placed in the waiting room, and then be admitted.

We hope you are all staying safe and will be able to join us!

Zoom meeting Oct 7, 2020 07:00 PM

Just a reminder that we are holding our fall Network meetings through Zoom calls. Our next meeting is scheduled for October 7th beginning at 7:00PM. The speaker will be Janelle Desjardins, RN, M.Sc.N., Manager, Psychosocial Oncology Program & Informatics (PSOP) Lead, Patient Education , Lead, Symptom Management. Jannelle will talk about the services offered to cancer patients and their families by the PSOP at the Ottawa General Hospital.

The meetings are run on Zoom and the instructions on how to join the meeting are shown below:

Hi there, 

You are invited to a Zoom meeting. 

When: Oct 7, 2020 07:00 PM Eastern Time (US and Canada) 

Register in advance for this meeting:

https://us02web.zoom.us/meeting/register/tZYqcu2vpjssEtYp9I6R9SY2jvwQG3dzpvMC

After registering, you will receive a confirmation email containing information about joining the meeting. If you already registered for the September meeting you should be able to use the same link you received for this meeting.

We hope you will be able to join us!

Congratulations all!

2020 Ottawa-Gatineau Walk …Steps to a Cure!

Thanks to your generosity and support our 2020 Virtual Ottawa-Gatineau Walk, Steps to a Cure has raised over $69,600 as of today to advance Multiple Myeloma research.  

The funds raised will ensure that Dr. McCurdy and the Ottawa Hospital Research Institute can undertake an innovative research project to better understand the impact of immunotherapies on multiple myeloma. 

An exciting outcome! Thank you all!


And a special thanks to Glenn Hussey, Chair, and Frank Shepherd, Vice Chair of the Walk organizing committee for their hard work in organizing this year’s walk in very challenging conditions.