Steps to a Cure 2021

Steps To A Cure – The Ottawa-Gatineau Myeloma Walk
In spite of the uncertainty and challenges associated with the COVID pandemic, last
year’s Steps to a Cure Virtual Walk was a great success.

At the outset, we were unsure whether we would get good publicity and participation, and whether we would be competing with other deserving charities for funds to support our research goals.


Thanks to everyone’s efforts we surpassed expectations on all fronts. Myeloma
Canada have a team (Pickering Communications) who promote all the Walk events
(including ours) and this year as a result of their efforts, Glenn was interviewed both
on local newspaper and CTV News – watch the video link at
https://ottawa.ctvnews.ca/covid-19-pandemic-doesn-t-stop-multiple-myeloma-
march-from-raising-over-60-000-1.5112675 .


And thanks to everyone’s participation we raised over $70,000.

Normally although half of the funds we raise support the work of Myeloma Canada, this year Martine Elias from Myeloma Canada agreed to support an additional research project. Over $65,000 came back to help support Myeloma research in Ottawa. See
https://med.uottawa.ca/en/news/faculty-medicines-2020-translational-research-
grants-set-stage-exciting-bench-bedside

2021 Spring Zoom Meeting Agenda: Come join us virtually!

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK – supporting patients with myeloma

2021 Spring Zoom Meeting Agenda

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our 2021 spring monthly information and sharing meetings. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma patients to physically distance we plan to continue to hold our spring all sessions on Zoom. Based on our fall Zoom experience and feedback from participants we have revamped the structure of the meetings so that two of the meetings will focus on “ Share and Care” and two will be discussions with medical clinicians on new developments in myeloma treatments and clinical procedures.  The meetings will start at 7:00PM and last an hour and a half.  Zoom details on how to register and join the meetings are given below. We look forward to “seeing” you!

Wednesday, March 3rd will be a Share and Care meeting. A chance to share experiences with myeloma patients and caregivers and to catch up on recent local and national myeloma advocacy,  education, research and fundraising initiatives.

Wednesday, April 7th we will be joined by  Dr. Arleigh McCurdy or one of her colleagues who will talk about new developments in myeloma treatments.

Wednesday, May 5th  will be a Share and Care meeting. Another chance to share experiences with myeloma patients and caregivers and to catch up on recent local and national myeloma advocacy,  education, research and fundraising initiatives.

Wednesday, June 2nd a medical clinician will join us to talk about clinical procedures and materials that may assist and support our navigation through the treatment process.

Come join us virtually!

For more information on the Ottawa –Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@xplornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Join us!

Our next meeting is scheduled for November 4th  beginning at 7:00PM. The speaker will be Dr. Arleigh McCurdy, who will review the new patient MyChart reports and talk about familial connections in myeloma and the potential pros and cons of MGUS testing.

The meetings are run on Zoom and the instructions on how to join the meeting are shown below:

Hi there,

You are invited to a Zoom meeting.

When: Nov 4, 2020 07:00 PM Eastern Time (US and Canada)

Register in advance for this meeting:

https://us02web.zoom.us/meeting/register/tZYqcu2vpjssEtYp9I6R9SY2jvwQG3dzpvMC

After registering, you will receive a confirmation email containing information about joining the meeting. If you already registered for the September meeting you should be able to use the same link you received for this meeting. Please note, when you connect to the meeting this time, you will first be placed in the waiting room, and then be admitted.

We hope you are all staying safe and will be able to join us!

Zoom meeting Oct 7, 2020 07:00 PM

Just a reminder that we are holding our fall Network meetings through Zoom calls. Our next meeting is scheduled for October 7th beginning at 7:00PM. The speaker will be Janelle Desjardins, RN, M.Sc.N., Manager, Psychosocial Oncology Program & Informatics (PSOP) Lead, Patient Education , Lead, Symptom Management. Jannelle will talk about the services offered to cancer patients and their families by the PSOP at the Ottawa General Hospital.

The meetings are run on Zoom and the instructions on how to join the meeting are shown below:

Hi there, 

You are invited to a Zoom meeting. 

When: Oct 7, 2020 07:00 PM Eastern Time (US and Canada) 

Register in advance for this meeting:

https://us02web.zoom.us/meeting/register/tZYqcu2vpjssEtYp9I6R9SY2jvwQG3dzpvMC

After registering, you will receive a confirmation email containing information about joining the meeting. If you already registered for the September meeting you should be able to use the same link you received for this meeting.

We hope you will be able to join us!

Congratulations all!

2020 Ottawa-Gatineau Walk …Steps to a Cure!

Thanks to your generosity and support our 2020 Virtual Ottawa-Gatineau Walk, Steps to a Cure has raised over $69,600 as of today to advance Multiple Myeloma research.  

The funds raised will ensure that Dr. McCurdy and the Ottawa Hospital Research Institute can undertake an innovative research project to better understand the impact of immunotherapies on multiple myeloma. 

An exciting outcome! Thank you all!


And a special thanks to Glenn Hussey, Chair, and Frank Shepherd, Vice Chair of the Walk organizing committee for their hard work in organizing this year’s walk in very challenging conditions.  

Important Zoom Meeting Aug. 25!

We have some exciting news. Dr McCurdy along with Dr. Ardolino at the Ottawa Hospital Research Institute are planning to undertake an exciting scientific research project that may have very direct and practical implications for the treatment of MM. The initial budget for the research is in the range of $20-30,000 and it is expected that the project will be completed within 6-8 months.

Myeloma Canada has very generously agreed to contribute its half of the funds raised through our 2020 Ottawa- Gatineau Myeloma Walk Steps to a Cure to support the project. It will mean that we need to raise close to 60,000$ with this year’s virtual Walk in order to support ongoing clinical trial data collection for myeloma patients at the Ottawa Hospital AND this new important initiative which should improve our understanding of how certain immunotherapy drugs function.

While fundraising is challenging in the current environment we have proven in the past that by all working together, we can do it. And it is for the benefit of us all!

Please join us on Tuesday August 25th  at 7pm for a Zoom meeting with Dr. McCurdy. She will explain the project and its importance.  Here is the information on how to join the meeting -you do not need to register for the meeting given the short notice:

Myeloma Canada Support Group is inviting you to a scheduled Zoom meeting.

Topic: Ottawa Gatineau Community Network Meeting

Time: Aug 25, 2020 07:00 PM Eastern Time (US and Canada)

Join Zoom Meeting

https://us02web.zoom.us/j/87836853076

Meeting ID: 878 3685 3076

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Dial by your location

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Meeting ID: 878 3685 3076

Find your local number: https://us02web.zoom.us/u/kvoJLvSUJ

And join us in raising funds to support the research by participating in this year’s Walk or simply making a personal donation to help us reach our fundraising goal.

 Looking forward to hearing from Dr. McCurdy and talking with everyone on Tuesday,

 

ZOOM Meeting June 10 !

Below is the invite for our next “virtual” (Zoom) meeting on Wednesday June 10th.
If you are planning to join in, please click on the link below to register for the meeting in advance (you can do this at any time, and you don’t have to “cancel;” if you cannot make it ).  You will then be sent information and a link on how to join the meeting.
I will start the meeting 5 minutes early (6:55pm), to admit people from the “waiting room”, or answer any questions about connecting via e-mail.
Robin and Glenn would like your ideas for our “virtual walk” event on September 20th, and any other issues you would like to share with the group in these more challenging times  (please feel free to send discussion items to Robin and Glenn in advance).
Looking forward to talking with everyone on Wednesday,
You are invited to a Zoom meeting.
When: Jun 10, 2020 07:00 PM Eastern Time (US and Canada)

Register in advance for this meeting:
Welcome! You are invited to join a meeting: Ottawa Gatineau Community Network Meeting. After registering, you will receive a confirmation email about joining the meeting.

After registering, you will receive a confirmation email containing information about joining the meeting.

Zoom meeting: April 22!

Tasmania Cave 16x20 v2.jpg
The last few weeks have been a challenging time for everyone and we do hope you are managing and staying well and safe.  Since we are all staying home and self isolating except for essential things, Myeloma Canada have arranged for all of the support groups to have access  to, and arrange “virtual meetings”  using Zoom, which accommodate up to 100 participants.  Many other groups are already taking advantage of this, and we thought we would see if this would be helpful for our group.
We thought we might focus this meeting on issues affecting patients and caregivers with the current Covid-19 pandemic including:
1. How are you dealing with isolation?
2. What are the challenges you are facing?
3. Any concerns/ impacts on your treatment?
4. Is there any information or additional support that the group or MC could provide?
but no formal presentations are planned.
Some of you will be familiar with Zoom, but for those that are not, if you have a phone, mobile phone, computer or tablet you should be able to join the meeting (video is not essential, but audio connection is needed).
If you are interested (or may be interested) in joining the meeting on April 22nd (we have time booked from 7pm – 8:30pm, but may not take that long), please reply to this e-mail  by April 21st at the latest, and I will send you the meeting invite details and instructions on how to connect.  This allows us to maintain physical distancing but be socially connected without leaving our homes.
Hoping to talk to you next Wednesday,
Frank Shepherd
(on behalf of Robin, Jean and Glenn)

2020 Spring Meetings

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our monthly information and sharing meetings.

PLACE:         Maplesoft Centre, 1500 Alta Vista Drive.

TIME:            6:45-8:45 PM

The meetings begin with a guest speaker and discussion followed by a session where patients and caregivers share their experience with the disease. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

Wednesday, March 4th  

Tina Crosbie BSc. (Pharm), ACPR, RPh, Clinical Pharmacist, Hematology, Ottawa Hospital, Vice-President, Canadian Association of Pharmacy in Oncology. Tina’s topic will be Living Well with Myeloma: A Pharmacist’s Perspective.

Wednesday, April 1st    

Janelle Desjardins, RN, M.Sc.N., Manager, Psychosocial Oncology Program & Informatics (PSOP) Lead, Patient Education , Lead, Symptom Management. Jannelle will talk about the services offered to cancer patients and their families by the PSOP at the Ottawa general hospital.

Wednesday, May 6th    

Dr. Renata Francovitch, MD, FCFP, Dip. Sport Med., will talk about the vital importance of exercise to maintain myeloma patient’s bone and muscle strength.

Wednesday, June 3rd    
Dr. Arleigh McCurdy  will review the new patient MyChart reports and talk about familial connections in Myeloma, and the potential pros and cons of MGUS testing.