October Meeting Update! Latest on Daratumumab!

Our next meeting which will be this Wednesday October 5th at 7pm. Our planned speaker Sophie Lebel has had to withdraw this week but agreed to reschedule her talk about cancer recurrence, the issues and anxieties to a future date (TBD).

We are very pleased to have Tina Crosbie,Clinical Pharmacist, Hematology at the Ottawa Hospital give a presentation on Daratumumab administered by SubCutaneous injection (which substantially reduces the treatment time compared with IV infusion).

She will cover how Cancer Care Ontario aka Ontario Health is now funding Daratumumab SC for patients in Ontario (after a long delay from the CVOID pandemic).  Tina will also discuss how this is starting to launch at the Ottawa Hospital, and will try to answer your questions about this exciting recent development.

Steps to a Cure

The Ottawa/Gatineau Steps to a Cure Myeloma March is only two weeks away.   Let’s walk the walk, raising money for critical research … moving one step closer to a cure. 

If you have not already done so, you are encouraged to register on-line for the march at Stepstoacure.ca .  Whether you are attending the in-person event, or participating in your own virtual walk, your support of the 2022 Multiple Myeloma Steps to a Cure March is absolutely crucial.  Funds raised will go toward furthering important myeloma research projects, under the auspices of both Myeloma Canada and The Ottawa Hospital’s Myeloma Research Team.   (While you can register on site, the process will be greatly facilitated if you register in advance through the on-line link identified above).

The in-person event is being held at the Ron Kolbus Center in Britannia Park, with the official kick off at 1:00pm, and registration open from 12:30pm.  We look forward to seeing many of you there, and together with those undertaking their own virtual walk, we wish everyone a safe and enjoyable time.  (Please walk at whatever pace and distance you are comfortable with.) 

Together we can make the 2022 Steps to a Cure Myeloma March another memorable event.  

Thank you in advance for your participation and contributions!

If you have any questions related to the event, please do not hesitate to contact us.

Frank Shepherd & Glenn Hussey

Co-Chairs, Steps to a Cure

Frank Shepherd – frank.shepherd@rogers.com

Glenn Hussey –  helene-glenn@rogers.com  

COVID vaccines and myeloma

Our first meeting this fall is on Tuesday September 13th at 7pm on Zoom.  Dr. Bhella will present results of the VIP study, which aimed to look at whether people with blood cancers (like Myeloma) mount a protective antibody response to COVID-19 vaccination (as this group was not included in the earlier COVID-19 vaccination trials).  Dr. Bhella is a lead researcher on the study.

We will also have an opportunity for a Share and Care discussion and will get an update on our Myeloma Walk Steps to a Cure (which takes place on September 25th) from Glenn and Frank.

Come together!

VIRTUAL MEETINGS UPDATE!

Tuesday September 13th
VIP study results and discussion with Dr.Bhella, a lead researcher on the study.

Wednesday October 5th
Cancer recurrence anxiety  – Sofie Lebel.
(Sofie presented on cancer related fatigue (CRF) in the Spring).

Wednesday November 2nd
A member of our myeloma medical doctors to share clinic news and any new developments in myeloma research and treatments.

Wednesday December 7th

Speaker to be confirmed

Cancer Related Fatigue

Our next Support Group meeting is on Wednesday June 1st  at 7pm.  

Our guest speaker is Dr.Sophie Lebel. Professor in Clinical Psychology at the University of Ottawa, who will talk about cancer-related fatigue – an important issue for many of us.  

Sophie has provided an information sheet on  Cancer-related fatigue (CRF), below.

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Radiation Oncology and its role in the treatment of myeloma patients

A reminder that our next Support Group meeting is on Wednesday April 6th at 7pm and Dr. Rajiv Samant  from The Ottawa Hospital will talk about radiation oncology and its role in the treatment of myeloma patients.

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Next meeting: Wednesday March 2nd,2022

Our next virtual Support Group meeting is on Wednesday March 2nd at 7pm and Dr. Alissa Visram from our Clinic Medical Team will be our speaker.  She is looking forward to meeting our group and may be able to provide an update on COVID immunizations and hospitalizations of Myeloma patents, locally and across Canada

The meeting will again be using Zoom. 

To register, please contact

Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca 

or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com