Radiation Oncology and its role in the treatment of myeloma patients

A reminder that our next Support Group meeting is on Wednesday April 6th at 7pm and Dr. Rajiv Samant  from The Ottawa Hospital will talk about radiation oncology and its role in the treatment of myeloma patients.

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Next meeting: Wednesday March 2nd,2022

Our next virtual Support Group meeting is on Wednesday March 2nd at 7pm and Dr. Alissa Visram from our Clinic Medical Team will be our speaker.  She is looking forward to meeting our group and may be able to provide an update on COVID immunizations and hospitalizations of Myeloma patents, locally and across Canada

The meeting will again be using Zoom. 

To register, please contact

Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca 

or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Our next meeting is on February 2nd at 7pm

March Highlands,Winter 2022

Just a reminder that our next meeting is on February 2nd at 7pm

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca  or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

February 2nd  – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss.

 We are also encouraging you to sign and share with your family and friends a Leadnow petition in support of nurses in Ontario. 

The issue is a critical one. As myeloma patients and caregivers we all understand how important nurses, their care, compassion, knowledge and professionalism, are to our journey with multiple myeloma.  In so many ways, they really are the backbone of our health care system!

In recent discussions with some nurses at the OGH they have indicated that they are upset and believe that Bill 124 is not treating them fairly. We agree.

While their union is attempting to meet with Ford, we understand that to date he has been resistant. This petition  (https://act.leadnow.ca/ON-bill124/?utm_source=leadnow&utm_medium=email&utm_campaign=blast2022-01-26&source=k ) will help to indicate that the public is supporting the nurses and perhaps give weight to their position. We can’t afford to lose them!

We hope you agree.

‘spring’ schedule for zoom meetings

Hi everyone and Happy New Year.

We are still working to finalize our ‘spring’ schedule for zoom meetings but as usual we will meet at 7pm on the first Wednesday of the month and hopefully the schedule will be as follows, and our next meeting is on February 2nd at 7pm:

February 2nd  – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss

March 2nd. – one of the Doctors from the Myeloma team

April 6 th. – Dr. Rajiv Samant, will talk about radiation oncology and its role in the treatment of myeloma patients

May 4th – one of the Doctors from the Myeloma team

June 1st  – ‘Share and Care’, and discussion of plans for our 2022 Steps to Cure event

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca  or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Curious about your antibody response to the COVID vaccine?

Some of you may already have enrolled in this study looking at the antibody response to COVID-19 vaccination for people with blood cancers (https://omc.ohri.ca/VIP/pages/About.aspx ). 

The study is still looking for participants and the results will help us understand more about how vaccination works for Myeloma patients.  You can find out more by following the links and contact information on the web site.

Steps to a Cure 2021 Update!

With only just over 4 days to go to our Steps to a Cure Multiple Myeloma Virtual Walk on Sunday, September 26th, we are now over $45,000 towards our fundraising goal of $70,000, and gathering momentum.  

As the principal fundraiser for the Ottawa/Gatineau myeloma community, the funds we raise to support Myeloma research are divided equally between Myeloma Canada and The Ottawa Hospital Foundation.

The easiest way for us to reach our goal is for more people to participate, while reaching out to family, friends and business contacts to encourage them to get involved as well.  If you have not participated so far, we encourage you to join in and donate to this worthwhile cause.  

As in previous years, the Steps to a Cure website accepts donations until late in November, so you still have time.

https://support.myeloma.ca/site/TR?fr_i1302&pg=entry

Come join us virtually!

Wednesday, May 5 th, 7:00 pm 

The meeting will follow-up with Dr. McCurdy’s last session and share participants experiences to date accessing the Covid vaccine.

We will also take time to share treatment experiences and/or challenges that participants may be currently dealing with in their myeloma journey.

Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma patients to physically distance
we plan to continue to hold our spring all sessions on Zoom. 

Based on our fall Zoom experience and feedback from participants
we have revamped the structure of the meetings so that two of the meetings will focus on “ Share and Care” and two will be discussions with medical clinicians on new developments in myeloma treatments and clinical procedures.  

The meetings will start at 7:00PM and last an hour and a half.  

Zoom details on how to register and join the meetings are given below. We look forward to “seeing” you!

If you have not received the meeting invite and would like to join, please contact Jean Shepherd – jean.shepherd@rogers.com

COVID Vaccine Update

Hi everyone,

Just another short update.   

For those who are still waiting to be contacted by the TOH Vaccination team, you may be able to use the following link to enter your information for pre-registration:

https://forms.office.com/r/M1GdbHWspC 

We are aware of a number of patients who have been successful doing this and have then received a phone call within a couple of days to book their vaccination appointment (even when they have had their first shot elsewhere). 

It may be worthwhile trying this is it helps you get an earlier appointment.

We hope you are all staying safe,

Robin and Jean