We need your support!
2019 Ottawa -Gatineau Myeloma Walk-–Sunday, September 22nd
The 2019 Ottawa-Gatineau Myeloma Walk-Steps to a Cure is being held on Sunday, September 22nd at the Ron Kolbus Lakeside Centre, Britannia Beach, Ottawa.
Registration opens at 12:00 and the Walk will take place from 1:00- 3:00 PM.
The purpose of the Walk is to bring the Ottawa-Gatineau Myeloma community together, create broader awareness of the disease and, perhaps most importantly, raise funds for Myeloma research.
Our fundraising goal this year is $80,000. Half of the funds raised will support the work of the National Myeloma Research Network and half will support CAR-T cell research for myeloma patients currently being undertaken by Dr. McCurdy and Dr. Kekre’s group at the Ottawa General Hospital. Both will directly benefit us all! And we need your support.
With your help we can do it! Pull a team together of family and friends, register on the Myeloma Canada March site or simply make a contribution to the Ottawa –Gatineau Walk- Steps to a Cure site (www.stepstoacure.ca). It all counts!
And join us on September 22nd for the Walk. It will be fun! You can walk 1-5 km along a beautiful riverside trail or simply enjoy music, refreshment and conversation in the Ron Kolbus Lakeside Centre. We are looking forward to seeing you there!
This year’s Ottawa-Gatineau Multiple Myeloma Walk is scheduled for Sunday, September 22, 2019 at the Ron Kolbus Centre, Britannia Park, Ottawa. Registration opens at noon, with the walk starting at 1 pm.
Come early to place a bid on the silent auction items, and to pick up your 50/50 tickets. Opening ceremonies start at 12:40pm with guest speakers including Dr. Arleigh McCurdy from the Myeloma Team of the Ottawa Hospital, Dr. Karim Abou-Nassar from the Oncology Team of the Gatineau Hospital, and Mayor Jim Watson from the City of Ottawa.
You are encouraged to pre-register at www.stepstoacure.ca . Family, friends, neighbours and colleagues are all invited to participate. You can register as a team or as individuals. This year’s fundraising goal is $80,000. 50% of funds raised will be used for research by Myeloma Canada, and 50% will be used for research into Car-T therapy by the Ottawa Hospital.
Detailed instructions on the registration process, and a copy of the event poster, are attached for your convenience.
For additional information about the walk, or should you wish to join our volunteer team, please contact Frank Shepherd at email@example.com or Glenn Hussey at firstname.lastname@example.org.
Together, let’s make the 2019 edition of Steps to a Cure a successful and memorable event.
Frank Shepherd and Glenn Hussey
2019 Steps to a Cure Walk Co-chairs
OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK
supporting patients with myeloma
The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our monthly information and sharing meetings.
PLACE: Maplesoft Centre, 1500 Alta Vista Drive.
TIME: 6:45-8:45 PM
This is our last meeting before the summer break until September.
We will begin with a short update on plans for this year’s Steps to a Cure Walk from Frank Glenn.
Our guest speaker,Dr. Peter Konzuk, ophthalmologist, will talk about The effects of Myeloma on the eyes.
After his presentation there is a break for refreshments and discussion followed by a session where patients and caregivers share their experience with the disease. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.
Please note: Dr. Konzuk sent along a web site about the Orbis Eye Surgery hospital plane that travels the world performing eye surgeries (https://can.orbis.org/en/the-orbis-flying-eye-hospital-is-coming-to-ottawa ). He was field medical director of the Orbis Project – 1989-90. I think his talk and presentation will be very interesting. The Orbis Flying Eye Hospital which will, coincidentally, be here in Ottawa June 1-3 and you can register on the web site if you wish to go and see it.
This year’s Walk will take place on Sunday September 22nd at the Ron Kolbus Lakeside Center.
The Ottawa-Gatineau Multiple Myeloma Steps to a Cure Walk is organized by members of the Ottawa- Gatineau Myeloma Community Network and other volunteers. The vision of the Network is to improve the quality of life for those affected by multiple myeloma and its mission is to provide support for those affected by multiple myeloma in the Ottawa-Gatineau Region through awareness, education, advocacy and supporting research.
The goals for our Walk are to bring the myeloma community together: patients, caregivers, family, friends, researchers and clinicians; to increase awareness of the disease; and ,to raise funds to support research activities, both locally and nationally to improve patient care and outcomes.
Myeloma Canada is our national partner in the Walk, and receives half of the funds raised to help support their range of research activities (including the Myeloma Canada Research Network). In recent years, the Ottawa Hospital Foundation has received the other half which has benefitted Dr. McCurdy’s myeloma research activities.
This year locally we hope to support the expansion of the Ottawa General Hospital’s Car-T program to treat patients with multiple myeloma. Car-T therapy is an exciting new immune treatment for patients with blood cancers, that has the potential to treat even solid tumor cancers eventually. The treatment is currently being used for patients with lymphoma and leukemia. Dr. McCurdy’s group working with Dr. Natasha Kekre expect to be able to treat patients with myeloma in CAR-T clinical trials as early as the summer.
We are looking for volunteers to help organize this year’s event!
Please contact Frank Shepherd, Robin Sully, Gilles Caron or Glen Hussey if you are interested in helping.
For more information on the Ottawa –Gatineau Community Network please contact:
Robin Sully at 613 622 5461; email@example.com or
Jean Shepherd at 613 277 4886; firstname.lastname@example.org
Half of the funds raised in our 2018 Walk, over $32,000, were presented to the Ottawa Hospital Foundation in a breakfast event on March 29th. Michelle Oana from Myeloma Canada attended, along with Frank and Jean Shepherd, and all of our Myeloma Doctors.
Myeloma Canada is thrilled to announce that as of March 14 2019, daratumumab (Darzalex) is now covered for Ontario myeloma patients who are experiencing one or more relapses.
A huge thank you to Myeloma Canada’s Ontario Advocacy Committee, and everyone who got involved in advocating for access to this important treatment. Together, we are stronger in making myeloma matter.
Daratumumab is now funded through the Cancer Care Ontario New Drug Funding Program for patients with good performance status who have received at least one prior therapy, either in combination with bortezomib (Velcade) and dexamethasone or in combination with lenalidomide (Revlimid) and dexamethasone.
Ontario myeloma patients now have access to another vital therapy proven to provide better patient outcomes and improve quality of life.