Are you looking for steps to a cure?
Author: john.podgorski@gmail.com
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VIRTUAL MEETINGS UPDATE!
Tuesday September 13th
VIP study results and discussion with Dr.Bhella, a lead researcher on the study.
Wednesday October 5th
Cancer recurrence anxiety – Sofie Lebel.
(Sofie presented on cancer related fatigue (CRF) in the Spring).
Wednesday November 2nd
A member of our myeloma medical doctors to share clinic news and any new developments in myeloma research and treatments.
Wednesday December 7th
Speaker to be confirmed
Cancer Related Fatigue
Our next Support Group meeting is on Wednesday June 1st at 7pm.
Our guest speaker is Dr.Sophie Lebel. Professor in Clinical Psychology at the University of Ottawa, who will talk about cancer-related fatigue – an important issue for many of us.
Sophie has provided an information sheet on Cancer-related fatigue (CRF), below.
For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com
Revision: Next meeting, May 11
Our next meeting is May 11
One of our Ottawa myeloma doctors will be speaking.
Radiation Oncology and its role in the treatment of myeloma patients
A reminder that our next Support Group meeting is on Wednesday April 6th at 7pm and Dr. Rajiv Samant from The Ottawa Hospital will talk about radiation oncology and its role in the treatment of myeloma patients.
For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com
Next meeting: Wednesday March 2nd,2022
Our next virtual Support Group meeting is on Wednesday March 2nd at 7pm and Dr. Alissa Visram from our Clinic Medical Team will be our speaker. She is looking forward to meeting our group and may be able to provide an update on COVID immunizations and hospitalizations of Myeloma patents, locally and across Canada
The meeting will again be using Zoom.
To register, please contact
Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca
or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com
Our Ottawa Hospital Myeloma Team
Dr. Arleigh Robertson McCurdy
Dr. Hyra Sapru
Dr. Alissa Visram
Erin Mutterback NP
Christine Veal RN
Sandy Ethier Administrative Coordinator
Sarah Chiasson Administrative Assistant
Hailey Gubbels Administrative Assistant
Our next meeting is on February 2nd at 7pm
Just a reminder that our next meeting is on February 2nd at 7pm
For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com
February 2nd – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss.
We are also encouraging you to sign and share with your family and friends a Leadnow petition in support of nurses in Ontario.
The issue is a critical one. As myeloma patients and caregivers we all understand how important nurses, their care, compassion, knowledge and professionalism, are to our journey with multiple myeloma. In so many ways, they really are the backbone of our health care system!
In recent discussions with some nurses at the OGH they have indicated that they are upset and believe that Bill 124 is not treating them fairly. We agree.
While their union is attempting to meet with Ford, we understand that to date he has been resistant. This petition (https://act.leadnow.ca/ON-bill124/?utm_source=leadnow&utm_medium=email&utm_campaign=blast2022-01-26&source=k ) will help to indicate that the public is supporting the nurses and perhaps give weight to their position. We can’t afford to lose them!
We hope you agree.
‘spring’ schedule for zoom meetings
Hi everyone and Happy New Year.
We are still working to finalize our ‘spring’ schedule for zoom meetings but as usual we will meet at 7pm on the first Wednesday of the month and hopefully the schedule will be as follows, and our next meeting is on February 2nd at 7pm:
February 2nd – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss
March 2nd. – one of the Doctors from the Myeloma team
April 6 th. – Dr. Rajiv Samant, will talk about radiation oncology and its role in the treatment of myeloma patients
May 4th – one of the Doctors from the Myeloma team
June 1st – ‘Share and Care’, and discussion of plans for our 2022 Steps to Cure event
For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com
Curious about your antibody response to the COVID vaccine?
Some of you may already have enrolled in this study looking at the antibody response to COVID-19 vaccination for people with blood cancers (https://omc.ohri.ca/VIP/pages/About.aspx ).
The study is still looking for participants and the results will help us understand more about how vaccination works for Myeloma patients. You can find out more by following the links and contact information on the web site.
Myeloma Ottawa Gatineau 