Next meeting: Wednesday March 2nd,2022

Our next virtual Support Group meeting is on Wednesday March 2nd at 7pm and Dr. Alissa Visram from our Clinic Medical Team will be our speaker.  She is looking forward to meeting our group and may be able to provide an update on COVID immunizations and hospitalizations of Myeloma patents, locally and across Canada

The meeting will again be using Zoom. 

To register, please contact

Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca 

or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Our next meeting is on February 2nd at 7pm

March Highlands,Winter 2022

Just a reminder that our next meeting is on February 2nd at 7pm

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca  or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

February 2nd  – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss.

 We are also encouraging you to sign and share with your family and friends a Leadnow petition in support of nurses in Ontario. 

The issue is a critical one. As myeloma patients and caregivers we all understand how important nurses, their care, compassion, knowledge and professionalism, are to our journey with multiple myeloma.  In so many ways, they really are the backbone of our health care system!

In recent discussions with some nurses at the OGH they have indicated that they are upset and believe that Bill 124 is not treating them fairly. We agree.

While their union is attempting to meet with Ford, we understand that to date he has been resistant. This petition  (https://act.leadnow.ca/ON-bill124/?utm_source=leadnow&utm_medium=email&utm_campaign=blast2022-01-26&source=k ) will help to indicate that the public is supporting the nurses and perhaps give weight to their position. We can’t afford to lose them!

We hope you agree.

‘spring’ schedule for zoom meetings

Hi everyone and Happy New Year.

We are still working to finalize our ‘spring’ schedule for zoom meetings but as usual we will meet at 7pm on the first Wednesday of the month and hopefully the schedule will be as follows, and our next meeting is on February 2nd at 7pm:

February 2nd  – ‘Share and Care’ with discussion on topics such as 4th dose of Covid Vaccine (see https://covid-19.ontario.ca/book-vaccine/ for the number to call, for those in Ontario), and any other topics you may wish to discuss

March 2nd. – one of the Doctors from the Myeloma team

April 6 th. – Dr. Rajiv Samant, will talk about radiation oncology and its role in the treatment of myeloma patients

May 4th – one of the Doctors from the Myeloma team

June 1st  – ‘Share and Care’, and discussion of plans for our 2022 Steps to Cure event

For more information on the Ottawa – Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@ explornet.ca  or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Curious about your antibody response to the COVID vaccine?

Some of you may already have enrolled in this study looking at the antibody response to COVID-19 vaccination for people with blood cancers (https://omc.ohri.ca/VIP/pages/About.aspx ). 

The study is still looking for participants and the results will help us understand more about how vaccination works for Myeloma patients.  You can find out more by following the links and contact information on the web site.

Steps to a Cure 2021 Update!

With only just over 4 days to go to our Steps to a Cure Multiple Myeloma Virtual Walk on Sunday, September 26th, we are now over $45,000 towards our fundraising goal of $70,000, and gathering momentum.  

As the principal fundraiser for the Ottawa/Gatineau myeloma community, the funds we raise to support Myeloma research are divided equally between Myeloma Canada and The Ottawa Hospital Foundation.

The easiest way for us to reach our goal is for more people to participate, while reaching out to family, friends and business contacts to encourage them to get involved as well.  If you have not participated so far, we encourage you to join in and donate to this worthwhile cause.  

As in previous years, the Steps to a Cure website accepts donations until late in November, so you still have time.

https://support.myeloma.ca/site/TR?fr_i1302&pg=entry

Come join us virtually!

Wednesday, May 5 th, 7:00 pm 

The meeting will follow-up with Dr. McCurdy’s last session and share participants experiences to date accessing the Covid vaccine.

We will also take time to share treatment experiences and/or challenges that participants may be currently dealing with in their myeloma journey.

Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma patients to physically distance
we plan to continue to hold our spring all sessions on Zoom. 

Based on our fall Zoom experience and feedback from participants
we have revamped the structure of the meetings so that two of the meetings will focus on “ Share and Care” and two will be discussions with medical clinicians on new developments in myeloma treatments and clinical procedures.  

The meetings will start at 7:00PM and last an hour and a half.  

Zoom details on how to register and join the meetings are given below. We look forward to “seeing” you!

If you have not received the meeting invite and would like to join, please contact Jean Shepherd – jean.shepherd@rogers.com

COVID Vaccine Update

Hi everyone,

Just another short update.   

For those who are still waiting to be contacted by the TOH Vaccination team, you may be able to use the following link to enter your information for pre-registration:

https://forms.office.com/r/M1GdbHWspC 

We are aware of a number of patients who have been successful doing this and have then received a phone call within a couple of days to book their vaccination appointment (even when they have had their first shot elsewhere). 

It may be worthwhile trying this is it helps you get an earlier appointment.

We hope you are all staying safe,

Robin and Jean

COVID 19 OPH Vaccination update

  1. MM Patients on treatment/post transplant meet the criteria for vaccine, and also for the dose-delay exemption.
  2. Please be patient, there are thousands of patients with many illnesses, and unfortunately limited doses of vaccines at TOH (and in the province in general). 
  3. If possible, we do recommend accessing vaccine in community (as discussed in our zoom meeting last week)
  4. Lists of all of our patients meeting criteria have been submitted to the TOH vaccine center, and patients will be contacted in time.
  5. Public Health/community vaccine centers are aware of hematology patients meeting the second dose exemption, and as of today should no longer be requiring letters from MDs- they will honour patients self-identifying for the earlier second dose.
  6. TOH has also asked OPH for a list of hematology patients who had first dose in community, so that we can book second doses if supply allows.

We are aware that some patients who have been contacted by TOH and have already had their first dose in the community have been able to book their second dose with TOH.

This of course may depend on vaccine availability moving forward.

Dr. McCurdy and her team are doing everything they can to move this vaccination process forward for us and will continue to pass on details as they become available…as we will.

In the mean time, we hope you will all take care to follow all recommended provincial and local Health Care guidelines, and stay safe.

April 7 th Virtual Meeting, 7pm – 8:30pm COVID VACCINATIONS INFO

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK –
supporting patients with myeloma

 
Given the continuing uncertainties surrounding Covid -19 and critical importance for myeloma
patients to physically distance we plan to continue to hold our spring all sessions on Zoom.
Our next meeting is on:


Wednesday, April 7 th  we will be joined by  Dr. Arleigh McCurdy who will talk about
COVID vaccination for Myeloma patients, any other issues or new developments,
and try to answer your questions.


Come join us virtually!
For more information on the Ottawa – Gatineau Community Network please
contact: Robin Sully at 613 622 5461; maplecrest2553@xplornet.ca or Jean Shepherd
at 613 277 4886; jean.shepherd@rogers.com


If you would like to join this meeting are not on our mailing list (and did not already
receive notification, please contact Frank Shepherd at frank.shepherd@rogers.com

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family,
and caregivers to our 2021 spring monthly information and sharing meetings. The mission of the
Community Network is to provide hope and to empower Myeloma patients, family, caregivers
through education, advocacy, patient care and support and sharing experiences.