2018 Fall Meeting Agenda

OTTAWA-GATINEAU MULTIPLE MYELOMA COMMUNITY NETWORK

supporting patients with myeloma

The Ottawa-Gatineau Multiple Myeloma Community Network invites Myeloma patients, family, caregivers and friends to our monthly information and sharing meetings.

 PLACE:         Maplesoft Centre, 1500 Alta Vista Drive.

TIME:            6:45-8:45 PM

The meetings begin with a guest speaker and discussion followed by a session where patients and caregivers share their experience with the disease. The mission of the Community Network is to provide hope and to empower Myeloma patients, family, caregivers and friends through education, advocacy, patient care and support and sharing experiences.

 Wednesday, Sept 5th

Dr. Arleigh McCurdy, will focus on interpreting blood results and effectively using MyChart to track your progress

Wednesday, Oct 3th 

Dr. Rutash Bose, Dermatology Resident, University of Ottawa, will talk about the connections between autoimmune disease and cancer. 

Wednesday, Nov 7th

Speaker to be arranged

Wednesday, Dec 5th  

Dr. William Henry, DDS, will introduce us to oral and dental concerns in Multiple Myeloma.

Come join us!

 For more information on the Ottawa –Gatineau Community Network please contact: Robin Sully at 613 622 5461; maplecrest2553@explornet.ca or Jean Shepherd at 613 277 4886; jean.shepherd@rogers.com

Advertisements

RÉSEAU COMMUNAUTAIRE DU MYÉLOME MULTIPLE D’OTTAWA-GATINEAU

Ordre du jour des réunions de l’automne 2018

Le réseau communautaire du Myélome Multiple d’Ottawa-Gatineau invite les patients atteints du myélome, leur famille, les aidants et les amis à nos rencontres mensuelles d’information et de partage.

ENDROIT :             Centre Maplesoft, 1500 Alta Vista Drive

HEURE :            18 :45h – 20 :45

Les réunions commencent par une présentation et une discussion avec un conférencier invité et est suivie d’une séance où les patients et les aidants partagent leur expérience avec la maladie. La mission du groupe de soutien est de soutenir et de renseigner les patients atteints du myélome, leur famille, les aidants et les amis par le biais de formation, de témoignages, de soutien et de partage d’expériences.

Mercredi 5 septembre

Docteur A McCurdy, hématooncologue, se concentrera sur l’interprétation des résultats sanguins et sur l’utilisation efficace de MyChart pour suivre vos progrès.

Mercredi 3 octobre

Le Dr Rutash Bose, résident en dermatologie à l’Université d’Ottawa, parlera des liens entre les maladies auto-immunes et le cancer.

Mercredi 7 novembre

Conférencier à organiser.

Mercredi 5 décembre

Le Dr William Henry, DDS, discutera des problèmes bucco-dentaires reliés au myélome multiple.

Joignez-vous à nous!

 Pour plus d’information sur le réseau communautaire du Myélome Multiple d’Ottawa-Gatineau, communiquez avec :

Robin Sully au 613-622-5461, courriel : maplecrest2553@explornet.ca ou

Jean Shepherd au 613-277-4886, courriel : jean.shepherd@rogers.com

 

2018 Ottawa-Gatineau Walk for Myeloma – Steps to a Cure!

The Walk.png

The Walk Committee has been hard at work organizing our major event of the year.

This year’s goal is to raise $85,000.00.

Join the Ottawa-Gatineau Myeloma Walk and take a step towards a cure for multiple myeloma! The Walk not only increases awareness of the disease but importantly helps fund clinical research and supports advocacy for accelerated access to game-changing therapies for Canadian patients living with myeloma. Multiple Myeloma remains a relatively unknown and rare form of blood cancer. Supporting research and raising awareness of the disease is critical.

Half the funds raised in our Ottawa-Gatineau Walk will support the work of Myeloma Canada and half will go to support myeloma research initiatives at The Ottawa Hospital. All in the interest of improving patient care and ultimately finding a cure!

Download your participant toolkit and kick-off your fundraising campaign today!

Follow the link below and you will be able to form a team, join an existing team or register as an individual:

http://support.myeloma.ca/site/TR?fr_id=1101&pg=entry&s_locale=en_CA

We also hope to have Facebook page up and running soon which will have information on the walk as well an opportunity for sharing our journeys.

When

Sunday, September 23, 2018

Where

Ron Kolbus Lakeside Centre, Ottawa, ON

Registration Start

12 PM

Contact

Name: Dave Rideout, Robin Sully, Gilles Caron

Email: rideoutda@mac.com, maplecrest2553@xplornet.ca, gillescaron@outlook.com

2018-2019 Meeting Speakers

Our meetings will continue to be held at the Maplesoft Centre on the first Wednesday of the month – September to November and March to June.

The detailed schedule will be available and sent out in early August. The first meeting is scheduled for Wednesday, September 5. The fall program will include sessions with:

  • Erin Mutterbach, the Myeloma nurse practitioner who will talk about her role working with myeloma patients and clinicians;
  • Dr. McCurdy who will focus on interpreting blood results and using MyChart;
  • a dentist to talk about specific dental challenges for myeloma patients; and
  • a session on autoimmune diseases and cancer.

In the Spring we are hoping to organize sessions on:

  • new treatment developments with one of our clinicians;
  • an update on transplants with Dr. Atkins;
  • a session on kyphoplasty and vertebroplasty for patients with damaged backs; and
  • a session on the role and activities of Myeloma Canada.

If you have any topic or news item you would like included in future meetings or newsletters, or other suggestions or requests, please contact Robin Sully, Jean Shepherd or anyone on the Executive Committee.