Myeloma Canada is part of a network called CONECTed (The Collective Oncology Network for Exchange, Cancer Care Innovation, Treatment Access and Education) which is comprised of a collaborative group of patient organizations who share similar interests :
Save Your Skin Foundation
Colorectal Cancer Canada
Lung Cancer Canada
Melanoma Network of Canada
This group has put out a press release last week publicly calling out CAPCA (Canadian Association of Provincial Cancer Agencies) for the secrecy behind the creation of a new committee called the Cancer Drug Implementation Advisory Committee (CDIAC) in 2016. This news release was picked up by nationally and we need your help to spread the word and share our concerns. This committee works in total secrecy and can directly impact getting drugs to our patients (or even put a halt on the process).
Here’s what you can do to help make some noise about this issue:
Share this link with your networks (email and social media) and ask them to do the same. If you are on twitter, you can also tweet out to your health ministers or even local media. You can also tag CONECTed in your posts as well (for all those who took part in Facebook 101, you should now be able to do that )
Time to make some noise!